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 Christel posted on Thursday, June 28, 2007 - 4:57 pm
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 Welcome to the forum page for “Drawing Breath: A Coastal Pushbike Journey”. My new journey, Hastings to the Isle of Wight, takes place between 31st May – 28th June 2009.
I am an artist using my diagnosis of emphysema to engage with issues of illness and identity in the environments I encounter. Cycle journeys form the basis of my art practice and the forum exists for feedback or discussion on any aspect of this project.
You can follow my journeys on the blog page of my website www.drawingbreath.org, which also has details of connected exhibitions or talks on the events page. Please log on to the forum and leave a comment ……. Jean Fraser
(Message edited by christel on May 21, 2009) |
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| Stephb posted on Tuesday, June 19, 2007 - 3:01 pm
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I am so looking forward to reading this - what a great progect.
I think the way the the progect will look at health issues using arts to explore and communicate, will be very interesting. |
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| Jeanfraser posted on Thursday, June 21, 2007 - 11:16 pm
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| Thanks Steph. I'll be glad to get beyond this heavy admin stage of the project, and out on the bike next month. Rhythms, cycles, phases - every day brings something new and challenging; it all gets reflected in our breathing levels. this project is entirely new territory for me! thanks for your support, Jean |
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| Jillposener posted on Wednesday, July 11, 2007 - 10:07 pm
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| Jean. What a fantastic project! Strange that I started bicycling just last month for the first time in 15 years. And breathing California air isn't always the greatest. Wish I were on the english south coast riding along with you..... |
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| Jeanfraser posted on Friday, July 13, 2007 - 6:30 pm
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| Hello Jill, I'm not an experienced cyclist myself and its been exciting learning some of the tricks of the trade. Cyclist friends have been very kind in teaching me how to maintain my new efficient bike. It has a lot of (low) gears which is particularly important if you have an oxygen deficiency. I'm off on Monday, hoping for fine weather. many thanks for getting in touch. |
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| Stephb posted on Friday, July 13, 2007 - 7:08 pm
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Dear Jean,
I don't know anything about bikes, do the low gears make it less assertive and there for you need less oxygen to power yourself?
Good luck with the trip. |
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| Jeanfraser posted on Sunday, July 15, 2007 - 6:04 pm
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| Steph, one rotation of the pedals makes the bike cover less distance the lower the gear you are using. So less muscle power is needed to pedal, and therefore you get less tired. That's the theory anyway, but i still need to get off on steep hills and push and rest alternatively. Anyone with a more user-friendly description of the gears/muscle power/oxygen relationship, please feel free to post. |
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| Rojharris posted on Monday, July 16, 2007 - 7:58 am
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Hi Jean,
When do you think you'll be passing Herne Bay? I'll try and bump into you (not literally) and ride along for a while.
Roger (tai chi) |
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| Jeanfraser posted on Tuesday, July 17, 2007 - 9:44 am
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| Roger, sorry for delay in posting back. If you call me on mobile on contact page i will let you know where i will be today. in general i'm not being too specific online about my whereabouts but at some places in particular it would be fun - and helpful - to have company. |
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| Ginette posted on Wednesday, July 18, 2007 - 12:11 pm
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Hello Jean
Hope you're happily on your way now. It seems that you've had a fun and gentle start -and the weather hasn't been too unkind. We'll be following your progress here at the Horsebridge. Good luck! |
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| Will posted on Wednesday, July 18, 2007 - 12:13 pm
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| Hello Jean. I can't believe you're on your way at last! It's a great project and I love the photos so far. Looking forward to following you on your journey from the comfort of my office. |
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| Historygirl posted on Wednesday, July 18, 2007 - 12:35 pm
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| Hi Jean, how is the weight of the bike and all the washing line-full of gear affecting your breathing? |
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| Maryf posted on Wednesday, July 18, 2007 - 4:44 pm
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| Hope the journey is going well and the physical demands of the ride leave energy for the aesthetic/artistic pleasures. I like your image of the bike as a prosthesis liberating the body from its limitations. Look forward to following your journey via your blogs |
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| Rojharris posted on Wednesday, July 18, 2007 - 6:37 pm
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HI Jean,
I posted this early today but it didn't show up so here we go again. It seems I missed you in Herne Bay. I did go out and about on Mon and Tues but quite early. Too busy today. Coincidentally I live in Broomfield, so at some point you were close by. Oh well. I hope you have a great trip and stay well.
Take care,
Roger |
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| Jeanfraser posted on Wednesday, July 18, 2007 - 7:46 pm
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| Hi Ginette and Will, thanks for good wishes, and the great send-off. There's still some teething problems (like i need some sort of card to give people i talk to about the project). My usual inability to do anything until the deadline looms means inevitably time runs out. But its great to be beyond (most of) the admin/preparation, and i'm managing so far to dodge the weather. |
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| Jeanfraser posted on Wednesday, July 18, 2007 - 9:34 pm
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I'm surprised how easy this bike is to ride, Historygirl, despite extra weight of baggage. I'm breathing well and sailing (this is relative of course!) up hills where previously i would have had to get off and push. Have only had to do so twice so far. Plenty of energy, but wear and tear in neck vertabrae playing up a bit.
And thanks for enquiring about the aesthetics of the project, Maryf. This can get lost too easily amidst the logistics of blogging and biking. Its easier to think about the creative aspect when biking along - thinking is less concrete and something more free-flowing seems to get liberated!
(Message edited by Jeanfraser on July 18, 2007) |
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| Stephb posted on Wednesday, July 18, 2007 - 9:52 pm
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Hi Jean,
Just been on the Blog section of you site, http://drawingbreathbikejourney.blogspot.com/ - I love the image of the diggers on the beach. It really is amazing what you see when you open your eyes and take it all in.
'...chronic illness and the changes in self-perception that this can cause....She has become interested in the interaction of environmental conditions with the skin and organs of the body and in how surfaces of the landscape often seem to mirror the body’s aging processes.'
I pulled this from the site, it got me thinking...
To be alive (whether that be human, animal or environment) is to be fragile, vulnerable, to age. - But why do some draw from this, feeding from and exploring life as you have done, tanking difficulty's and pulling every thread of value from the experience. Can there be some positive thing we can get from any problem/negative – perhaps this is to truly live?
...'every day brings something new and challenging.' How true, thank you!
(Message edited by stephb on July 18, 2007) |
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| John_h posted on Wednesday, July 18, 2007 - 11:31 pm
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Hi Jean
What a wonderful and inspiring project.
I cycled some of the coast of Kent with my son (Sam) last Summer and it was a wonderful experience, taking in and enjoying the wonderful changing landscape and seascape and growing a deeper father/son bond and relationship as he matures into adulthood.
I too love the beaches as Whitstable and Herne Bay and have some great memories from there - along with one or two pebbles and shells I gathered along the way.
Will follow your blog as you progress and will pray you find all the health and strength you need to keep on inspiring us all!
Best Wishes
John |
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| Another_lisa posted on Thursday, July 19, 2007 - 8:35 am
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Hi Jean,
I'm enjoying your blog. I like seeing different views of places I've known since a child.
Hope to see you Sunday.
Lisa |
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| Another_lisa posted on Thursday, July 19, 2007 - 7:01 pm
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Hi again, fellow samboista (apologies for my poor Brazilian-Jean's taken time out from being our tallest bell player to do this project). You had some wishing you well thoughts as we rested after our first gig at the golf club in Whitstable. I imagine you were busy cycling around 2pm as we tucked into a late lunch.
How are you coping with pacing yourself and is your lightweight kit working out?
hope you're having fun,
xLisa (Samba Pelo Mar) |
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| Wavewatcher posted on Thursday, July 19, 2007 - 8:13 pm
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Hi Jean,
It's great to be able to follow your progress and be with you in spirit on this journey. I love your photos and the dialogue. Take care dear friend. |
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| Historygirl posted on Friday, July 20, 2007 - 10:38 am
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| Jean, You mentioned finding wild apples by the path enroute to Minnis Bay: there has been a village and significant buildings on the Reculver site, including a 7th century monastery, which would have had orchards. These might explain the apples. |
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| Frankie posted on Friday, July 20, 2007 - 1:21 pm
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| Hi Jean ~ love your photos. Madame Zena Philia of Whitstable, Tarorist to the stars, has done you a reading as promised. According to the cards, your spiritual history has required you to take a magical journey (see, told you I was psychic) which will involve intimate sharing, linking with friends, and finding deep meaning in yr experience. The challenge you face is meeting your inner demons, i.e., fears, obssessions, illusions as you work through symbolic layers into health. This is the gateway of your quest. Your gift, which helps you to successfully deal with this, is confidence, an ability to love and help others, awareness of and connection with nature. So the journey involves opportunities of developing and appreciating these qualities. Enjoy yourself! |
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| Fam_dj_and_j posted on Friday, July 20, 2007 - 3:37 pm
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Hi Jean
Went for a run this morning and thought of you as the sky opened up and tried to wash me away. It felt very elemental and fresh though and the smells of nature had that lovely earthy scent that you don't get to notice on a dry day. Bit of a long winded way of asking how your coping with the bouts of rain actually.
Great photos and looking forward to hooking up with you at Deal if not before. |
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| Jeanfraser posted on Friday, July 20, 2007 - 3:58 pm
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Touched by your good wishes, Wavewatcher and Anotherlisa. The weight of baggage continues to be ok, and I am managing to dodge rain indoors while grappling not very successfully with HTML codes. If anyone has expertise, please call my mobile (see Contact page on site)! And Frankie, what can i say, thanks for the tarot reading! Its interesting what comes up about obsessions, fears and illusions. This project comes out of the deepest fear, and is the product of denial and unacceptance, so maybe the cards are right!
When I was researching the project last summer I talked to a tarot card reader working the cafes round Westgate. But she wasnt there on Wednesday.
(Message edited by Jeanfraser on July 20, 2007) |
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| Stephb posted on Friday, July 20, 2007 - 6:02 pm
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Windmill Community Allotment Project looks great, have been on internet to find a bit more out about it.
http://www.farmgarden.org.uk/index.php?option=com_content&task=view&id=56&Itemid=133 |
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| Pharmasister posted on Friday, July 20, 2007 - 6:45 pm
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Hi Jean,
I'm so glad it's been going reasonably well so far. I'm loving your blogs and photos and the website was worth all the agony you went through for it!
Am keeping tabs,
Carol H |
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| Maryf posted on Saturday, July 21, 2007 - 11:11 am
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| Have managed yo access your early blogs and see your splendid photos. Now I know the artistic side of your project is definitely not lost amid the logistics! Hope you escaped the torrential rain yesterday especially with your one-of-everything wardrobe. Does very damp weather affect your breathing? |
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| Sos posted on Saturday, July 21, 2007 - 3:36 pm
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| I'm trying a 4th message now. Hope wet weather is leading to interesting stops and starts. |
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| Jeanfraser posted on Saturday, July 21, 2007 - 6:32 pm
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| Sos: what persistence, 4 tries, glad you finally made it! It's bizarre that in this region we seemed to have escaped the weather, when so much of the rest of the country is really suffering. But the starts and stops are always interesting regardless of weather - lots of conversations and the way they start (the ones about the project) is usually through my saying I'm cycling from Whitstable to Hastings. I'm finding this the best way of getting talking, it seems to stir people's curiosity. A problem when i started was that i didnt have cards to give out, but just got some made today (thank you Rita!). Damp isnt a problem, Maryf, at least not as long as my medication is topped up, and its not cold as well. What affects the lungs varies so much from individual to individual. The worst thing for me when cycling is head-on wind, it requires twice as much energy to progress and is exhausting. So far only sideways and following winds, so its been pretty good. |
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| Jeanfraser posted on Saturday, July 21, 2007 - 9:21 pm
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Catching up on posts not so far acknowledged: thank you John_h, Fam_dj_and_j, and Pharmasister for your posts. Good to hear from the BE group! Your support has been invaluable.
A NOTE FOR NEW MEMBERS: YOU WILL NEED TO REGISTER FIRST BEFORE TYPING MESSAGE. CLICK ON "REGISTER" AT TOP RIGHT OF PAGE, AND DONT FORGET TO CLICK ON THE TINY BOX MARKED "GROUPS" IN THE LIST OF QUESTIONS OTHERWISE YOUR REGISTRATION WONT HAPPEN! THANKS. |
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| Vera posted on Sunday, July 22, 2007 - 6:34 pm
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| Was interested by Historygirl's mention of the monastery and houses at Reculver - I know someone who lived in Reculver in the 1950s when it was a village. It's amazing it has now disappeared. I've noticed the apples myself and have assumed they are remnants of cottage gardens as there are also roses and other garden plants. This would make them not as old, but still interesting! |
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| Historygirl posted on Monday, July 23, 2007 - 10:35 am
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| Vera, Thanks, your explanation for the apples seems more likely. Do you know when Reculver stopped being a village? Why did people move away? |
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| Charlotte posted on Monday, July 23, 2007 - 11:36 am
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| Hi Jean, I am computer-phobic and technologically incompetent to a high degree, so no confidence that this will reach you. BUT, I will keep trying if I fail. My sweetheart gone to USA this morning so I have finally made time to sit at the computer and look at your site - fabulous photos and I do like your chatty blog. Its the first blog I have ever seen! I do hope all is going as well as you expected. I have found a quote for you, written pre-war about the pioneers who were attempting to climb Mount Everest (without oxygen),and risking life and limb in their quest. "their ambitions and fantasies are strong enough to brush aside the doubts which more caustious men (and women) might have. Three things they have in common: faith in themselves, great determination and endurance. Determination and faith in themselves are their strongest weapons. At best such men (and women) are regarded as eccentric; at worst, mad....". Love from one eccentric to another xx |
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| Undergroundpearl posted on Monday, July 23, 2007 - 6:19 pm
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| hi Jean.great web site!looking forward to seeing you in Deal,on thursday. |
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| Kirstymarie posted on Tuesday, July 24, 2007 - 9:17 am
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Hello Jean,
I'm emailing you from a Creative Partnerships office in Southampton - we were emailed a link to your site from the Arts Council, our national office.
I'd just like to congratulate you on your journey, and I hope the flooding doesn't affect your route. Your blog is fascinating, and your journey inspirational, especially in the light of your illness.
It's made me realise how much I miss the summer weather, with that feeling of freedom and the opportunity to see new places and experience their way of life! I'm originally from North Essex, and we used to go to Norfolk and Suffolk for family holidays - it was brilliant to spend so much time by the coast in such gorgeous little towns and villages.
Good luck for the remainder of your trip, I will be keeping up to date via the website.
Take care,
Kirsty xx |
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| Jacquid posted on Wednesday, July 25, 2007 - 12:05 pm
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hello jean
I have a woman called Aisling helping me to plough through this internet business! Maggie is at the hospital again today, so we're hoping all will be ok. Iy has been quite difficult - although Maggie is going to work, she is being 'a working class hero'!!!
For me, trying to work through your journey is not such hard work as i'm sure you're feeling, but it is something completely unknown to me, so bear with me. The internet is still such a mystery to me - I'm sure it's to do with getting old and having to rethink something that somebody such as Aisling can do automatically.
I love the title of your project - "Drawing Breath" - very clever and poignant. The photographs on the website are fantastic.
I was quite worried that you might not be able to continue your journey because my friend, Christine, who is in Stroud, has been flooded out. But I'm glad that this is not the case for you. |
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| Maggie posted on Wednesday, July 25, 2007 - 12:43 pm
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| Great to hear from you en route! . . It's a great project, Jean, with so many exciting aspects to it; travelling alone is exciting, whether it's near home or the other side of the world - allows you to meet people, and meet yourself, in a different way. The pictures look great, they will make a beautiful exhibition. Look after yourself, especially on the uphills! |
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| Toni posted on Wednesday, July 25, 2007 - 12:44 pm
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Hi there Jean,
Watching your progress with great interest. Keep it up m'dear. I'm sure I speak for all our Canterbury and District Breatheasy members, you're doing great!! Keep it up, but most of all, enjoy the experience!!! |
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| Janeski posted on Wednesday, July 25, 2007 - 1:12 pm
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| Hi Jean - it's a lovely morning here in Whitstable - hope it is wherever you are! Barbara Ehrenreich wrote a good article in Observer this weekend commenting on the lack of evidence re: positive/negative mental states affecting the outcome of illness. It was good to read it as we can do without theories that just make us feel self blame and guilt huh? It's great that you're doing something about your "deepest fears" through this project - positive attitude might not make us well but it will make us feel better about the situations that we find ourselves in so go girl but not too fast!! |
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| Karen posted on Wednesday, July 25, 2007 - 4:42 pm
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What a fascinating journey. I really like the idea behind it, because having had a serious illness myself I can understand how often your view of the world dovetails with your view of yourself and your own body.
So to take that natural inclination and make it the basis for an artistic journey seems really interesting to me. I'm wondering if it is a healing experience? |
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| Jeanfraser posted on Thursday, July 26, 2007 - 7:50 am
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Hello Karen, Janeski, Maggie, Jacquid, Charlotte, U/pearl and Kirstiemarie - thank you for all your communications. I'm trying to look for themes which recurr, possibily also in earlier posts.
Karen, maybe we (have to?) make different identifications if we get a serious condition. Generally, people tend to want to see themselves and their situations mirrored in some way by their environment. And the landscape is one obvious mirror to illness and aging as it's constantly changing, eroding and it gets sick too. Some of the imported stones in the raised Whitstable beach look very like magnifications of osteoporotic bones. This is definitely becoming the most healing experience of my life, in very many areas, not just physical health (though I am getting fitter too and have reduced medication since Monday).
Ive had some comments (not on the forum) questioning my travelling alone, but you have exactly expressed it, Maggie - "meet people, and yourself in a different way" - hopefully i can hang on to the experience after i get back. However, I AM having biking friends with me over the isolated uphill bits where I feel more vulnerable.
Another aspect of the uphill/effort/oxygen difficulty is that I had to abandon my professional camera equipment and buy a small digital camera. There is a loss of control, aesthetically - very little depth of field for instance - so it has been wonderful that people are liking the images.
Several people have mentioned the weather. So far Ive been lucky. But it's strange - and feels a bit ironic for one who lives below sea level - hearing about the devastating flooding and weather conditions, and to have escaped it. Poor people - the older residents of Whitstable who experienced the 1953 sea flooding know well what it's like. There is less extreme evidence of the crazy weather along my route too.
And Charlotte, thanks for your lovely and interesting post. Mad or eccentric? There is something obsessional about this. It makes me think of part of Frankie's tarot reading - obsession can work both ways, it can be obstructive (as an "inner demon", but I dont think I could be doing this journey without a degree of obsession! And like you, and Jacquid mentions this too, I have been, often still am, highly computer-phobic but just having to do it makes it begin to come more easily. For me at least its easier than cryptic crosswords.
Returning to positivity which has come up in earlier posts - Im trying to get hold of the Observer article, Janeski. You're right about the self-blame and guilt, it's too easy to get into that frame of mind. We all do what we can to get by, and for me this is a temporary but euphoric aberration! Can you save me the article? |
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| Jeanfraser posted on Thursday, July 26, 2007 - 8:18 am
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Hi Toni, Pharmasister (great user name bty!), Rosemary, Ian, Joan and Ken, and everyone else, here's a quick one for you BE people. Thanks for your good wishes and continued support.
I was thinking about what you say about the stress of working on the website, Pharmasister. Ive realised how despite speaking same language, we were all taking different meanings from what we were hearing. Anyway, we got through, mended bridges, and I'm happy with the result.
Speaking about computer-phobia in the previous post, that message has now come up twice. I cant delete it because someone logged onto my computer a while back to post a message and now it will only recognise her log-in details. My computer doesn't know me!
Keep well, all of you. |
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| Ginette posted on Thursday, July 26, 2007 - 10:47 am
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Hello Jean
Wow! I've just caught up with your blog and I'm so full of admiration. It's wonderful seeing the whole project come to life with real people and places after all the months of planning. The photographs are amazing. Thinking of you and sending you my love. Ginette |
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| Frankie posted on Thursday, July 26, 2007 - 1:24 pm
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Hi Jean! All so interesting. I too was pleased to see what Barbara E. wrote about illness, which contributes to the debunking of the self-blaming 'you can heal your life' stuff (with its accusatory corollary of 'so it's your own fault if you can't, you silly negative thing!') ~ following on from Susan Sontag's groundbreaking book 'Illness as Metaphor.' B.E. even said studies found that optimism can stress the immune system negatively! I'm trying for a sort of middle way I think, feeling hugely positively appreciative of everything wonderful life brings ~ glass half full ~ while also trying to be mindfully accepting too. Recently went to a talk by local artist Estelle Jourd about ephemeral artworks and it made me think of the transcience of everything ~ stones, bones and landscapes and not trying to hold on either to the feeling good/well times or the bad ones. It seems chronic illness is a journey in itself, different for everyone. Another recent Guardian article (will keep for you) by Rebecca Atkinson wondering if she would take new therapies for blindness. Her identity would be changed, would she want that? Illness sometimes makes me wonder, who am I? Am I 'really' someone else (the person I would be if not ill) or should I embrace the life I have (which I could miss if not ill.) Yet also we are so much more than 'ill' people and don't want to be defined by our symptoms. It's fascinatingly complex ~ thanx for opportunity to discuss. Carry on cycling! Love, F.x
PS. Madame Zena says yes, obsessions can be very productive! and inner demons can be teachers. She will do an update if you want. |
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| Jeanfraser posted on Saturday, July 28, 2007 - 11:57 am
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Frankie: Thank YOU for opening up the discussion. I have also experienced guilt when not able to be or feel positive and can well believe this could depress the immune system. Those binaries - positive/negative, sick/well - arent able to explain our different limitations and abilities, or anything very useful about our identities or coping strategies. Denial is a good one for me, though of course reality frequently catches up. I read about a study some time ago about denial producing just as good outcomes for living with cancer, as any other psychological approach.
Lack of energy isnt the main problem for me - luckily, as i need to exercise to try and keep reasonably well, hence this project. Being outdoors helps keeps depression at bay - i feel envious of people who can access their creativity and a degree of peace of mind indoors.
Allowing space for reflection would be helpful but focussing down on the logistics of the journey holds off anxiety, and the cycling itself is (mostly!) very liberating. i just want to delight in what i have left, while i still have it. As you will know, the future might be hooked up to an oxygen bottle and even Madame Zena cant predict that. But a reading about current situation would be welcome! |
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| Wonderer posted on Sunday, July 29, 2007 - 1:22 pm
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| Hi Jean, enjoying the website, but dont know anything about the medical problem. What is emphyesma? Is it reversible? |
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| Historygirl posted on Monday, July 30, 2007 - 9:40 am
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| It is possible to see your physical vulnerability mirrored in the vulnerability of the coastline you are cycling round. Aside from the threat from the sea, which is likely to increase with global warming, it was the entrypoint for the 2 great invasions of this island: the Romans at Richborough in Kent in 54BC, and William of Nomandy at Hasings in 1066. |
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| Wavewatcher posted on Monday, July 30, 2007 - 10:16 am
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Hi Jean, from one photographer to another I wondered how the experience with a compact digital camera compared to your trusty old Nikon?
It's interesting to see your documenting images in colour and not your familiar black & white, are you converted?
I guess you'd need a trailer for all the Nikon lenses etc.
You seem to have embraced the technology of the camera and computer, will there be an exhibition of your work ? or a slide show with commentary - I love the 'incidental' comments along your journey. |
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| Rnj posted on Monday, July 30, 2007 - 11:13 am
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Hi Jean
Testing testing … our other couple of posts haven't registered so trying on another machine
We'll repeat what we've said before if this works but for now, it all looks great, hope you're having a good time in Dover today
xx rosa and jo |
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| Frankie posted on Monday, July 30, 2007 - 2:29 pm
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| Happy monday Jean! Well, Madame Zena doesn't do prediction or claim anything about the future, (she has trouble even remembering what she did yesterday or is supposed to do tomorrow.) All she does is draw tarot images which may suggest useful ways of reflecting positively on our experiences and intentions. She will select a weekly card for you for the rest of your journey and at the end you can see how the whole spread might relate to the project. Today's card is the wheel (!) of fortune, divined as representing opportunity to break out of old or repetitive patterns and widen our visions. 'Possibility of breakthrough, especially when a person seems to have gotten nowhere,' says the oracle. More of a spiral than circle, thus offering chances of development of self-awareness every time we go round. On with the karmic cycles (haha) of our own making! X |
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| Jeanfraser posted on Tuesday, July 31, 2007 - 12:09 pm
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Hi Wonderer, I'll try to explain, but if any medical practitioners or British Lung Foundation people are reading, please feel free to correct any inaccuracies here!
Emphysema is one of two main conditions to come under the umbrella term, chronic obstructive pulmonary disease (COPD), the other being chronic bronchitus. It causes extreme breathlessness and affects mobility, especially where this requires effort. Caused by smoking or environmental pollution (and less commonly inherited through an absense of a factor in genetic makeup called alpha-1-antitrypin), it causes the walls of the tiny alvioli (air sacs) to break down, so that the sacs get bigger and their surface area, vital for oxygen to pass from the lungs into the bloodstream, decreases.
Lung tissue loses flexibility, and muscle tone in the lungs also decreases. Breathing, normally an automatic function, becomes a more conscious process, as normal air pressure inside the lungs changes in relation to that of the environment. Oxygen saturation in blood decreases - above 96% is normal - making the heart have to work far harder to circulate oxygen around the body.
When someone's oxygen saturation levels are regularly below 90%, they will need supplemental oxygen for a major part of the day.
Unlike asthma, COPD is not reversible, but progressive. It may affect other body systems besides respiratory - the heart and circulation is an obvious one, but that feels like enough info for now!
Thanks for your question, Wonderer. |
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| Jeanfraser posted on Tuesday, July 31, 2007 - 12:28 pm
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Hi Frankie, Wavewatcher, Rnj and History girl, thanks for the messages. I'm running out of time in my Dover library session (staying at B&B so no friend's computer available!) I'll reply tomorrow, but for now, Rnj - and anyone else who is having difficulty posting - try this:
If you click on Preview/Post Message, this brings up the Preview page. Double click on Post Message, then about 10 seconds later, click on this again. A dialogue box will come up telling you off for posting twice, but when you check back to the main Forum page, you should see your message there. Scientific? It works for me. Til tomorrow! |
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| Maryf posted on Tuesday, July 31, 2007 - 4:22 pm
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Hullo Jean
I believe you arein Dover of which I know only the white cliffs disappearing/appearing from the deck of a cross-channel ferry. Do take some photos to show us what else there is. Now I've got my new laptop working I have managed to catch up on your blogs. Good about the spirometry reading if that is confirmed. It's really good to follow your journey with its many adventures, discoveries and encounters in a relatively short distance. Does the fact that you are recording thenjourney make you notice things more than usual or the fact that it is the journeys that are as significant as the destinations? I love your photos, especially the stones and the pitted rocks: sen side by side it look as if the stones have been scooped from the rock to make,perhaps a puzzle. I also like the brass instruments with their lovely reflections. |
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| Jeanfraser posted on Wednesday, August 01, 2007 - 5:04 pm
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Hope everyone will forgive another joint post. The blogging seems to take so long, that sometimes the forum gets squeezed. maybe you could all talk to each other as well but i really do appreciate all the messages.
So, History Girl: Invasion is an interesting simile, but maybe more appropriate to other conditions such as cancer. I cant escape that I set up the invasion of my body myself through smoking. Hindsight is a fine thing! Do you know anything about the sinking of the Lancastrian in WW2 (see today's blog)? And re. the Battle of Hastings, I recently read in a local guidebook, that it was in fact fought in Battle. Which would make it The Battle of Battle . . .
Wavewatcher - I have used colour in the past but maybe not showed those ones to you. I would love to make a tape/slide, love the form and its sense of time passing. not quite a film but not stills either. I recently read an old philosophical saying about time and space which somehow feels right here:
"Time exists so that everything doesnt happen at once ... and space exists so that it doesnt all happen to you." I saw this quoted in a late chapter by Susan Sontag, but even she didnt seem to know its origen.
Drawing Breath was originally also titled Coastal Pushbike MOVIE not journey. So maybe moving imagery of some kind will eventually result. Exhibitions are listed on the Events page of the site.
And Madame Zena: thank you for continued readings. I really like that the latest card is a wheel, and that you think of it more as a spiral than a circle. In art therapy the spiral is a very powerful symbol. It feels more open than a circle, and with room to move up or down. Does a spiral go on in both directions for infinity? Look forward to next week's.
Rnj: much looking forward to seeing what it was you posted in the first place.
And finally Maryf: I think I'm falling in love with Dover. I'm finding it one of the most interesting places ive been to so far(though hard to get a good cup of coffee). I think doing the journey alone makes me look harder. Company is lovely but distracting, which is why ive only met loved ones from home intermittantly (though with much appreciation!). And being forced to go slowly means a greater opportunity to look and take in things like skins and surfaces. The journey itself does feel significant, a strange mixture of the considered and the superficial. Thank you for your comments re the photos.
All for now, to Folkestone tomorrow, longest uphill journey yet. |
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| Pharmasister posted on Wednesday, August 01, 2007 - 6:10 pm
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Hi Jean,
Missed you at the Breathe easy committee meeting today - you were much talked about and your photos much admired! I'm really impressed with the way you talk to people and find out their stories.
We're all very much with you in spirit. |
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| Biancablf posted on Thursday, August 02, 2007 - 1:29 pm
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Hello Jean
I hope the ride is going well. The photo's look fantastic and I so admire the history and information you have gained from talking to people. You've got such charm.
I really hope I can visit you but my diary is chocker block. It will most likely be towards the end of your journey, either Wed 15 or Fri 17. I will let you know.
Keep safe. |
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| Rosemary posted on Thursday, August 02, 2007 - 7:33 pm
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| Hello Jean Thanks for your email, we'll certainly add to the protests about the proposed developments in the harbour. Have followed your progress with great interest and enjoy your descriptive blog very much. I'm sure you have mastered those gears by now and find hill climbing easier. Love & best wishes Rosemary |
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| Estelle posted on Thursday, August 02, 2007 - 11:47 pm
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| Hi Jean, Its been very interesting following your journey, blog and photographs. I envy you the cycling and all the interesting connections you are making along the way. Hope the weather stays kind to you. Will follow you with interest. Best wishes Estelle |
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| Jeanfraser posted on Friday, August 03, 2007 - 12:22 pm
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Hi Breathe Easy people: glad to know you're there and look forward to hearing all YOUR news when i get back. The gears are good, Rosemary, though i discovered i had been doing them wrong for most of the trip, and now the chain's loose. But it should make it.
Bianca, it will be lovely to see you if you can make it but dont worry. Ive not got much riding to do that week and will be making visits, filling things i didnt have time for along the way, plus resting before the final big hike up the big hill to Hastings on the 19th (keeping the best til last).
Ive just had Sean from the respiratory team visiting Gillian's where im staying and doing spirometry test - the worst so far, only 33% of predicted with lung age of 124. I may put it in the blog later. I had gone down 100 units of medication last night to see what would happen!
Estelle: really good to get your message, thank you! |
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| Frankie posted on Monday, August 06, 2007 - 4:13 pm
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| Hi Jean! Your tarot card today shows the image of two snakes wound around the tree of knowledge with its fruit of wisdom, which made me think of Derek Jarman's garden, which must look wonderful at the moment in the heat and stillness. Before the Eden myth the garden was paradise. On this caduceus, symbol of healing, one snake is green for plant life and one red for animal life which life-givingly 'entwine with every breath' in our interdependent exchange of carbon dioxide and oxygen. The snakes also represent kundalini energy rising from the base of the spine to bring enlightenment. The oracle says 'joy and energy, intuitive wisdom, physical and emotional healing,' and advises self-belief and confidence. I hope this fits your experience in the magical shingle Ness! |
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| Maryf posted on Tuesday, August 07, 2007 - 2:15 pm
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Hullo Jean
Just to let you know I am still on board following your journey, with accompanying blogs and photos, with great interest. I guess traveling has become a way of life by now. I can see how people can accidentally become permanent travellers. I heard Rory Stewart talking yesterday: he walked from Turkey to Pakistan. Now he has been back a couple of weeks he is off to Afghanistan again in spite of promising his Mum that he would stay home this time.
I have noticed from your blogs how many of the people you have met by chance suffer from or are related to sufferers from lung diseases - even the dog. Your journey has provided valuable links between all these people.
No need to respond to my message. I am very aware of the burden of replying to everybody on top of your other tasks! |
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| Mollie posted on Tuesday, August 07, 2007 - 9:00 pm
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I 'll try again!havent been too successful trying to get on to the blog.
As proud owner of the 'Blog Star' Billie the dog I would like to report that he was dlighted by Jeans visit as were David and myself.It was lovely to see you Jean so energetic and exhillarated!
He seems so much happier today and even managed a huge bark,which he does very in frequently these days( he used to bark at the slightest noise before he became .
Tibetan terriors were bred to guard the Tebetan monasteries,as they bare such good guard dogs but so very gentle in nature( barked a lot but would not harm a fly,in line with the Tibetans way of life)
In the summer their coats would be shorn and spun into wool to make coats for the monks in the winter.
Billie also purks up when my Sister in law and her husband come to stay,they both suffer from severe emphysema;
Question;is it because he gets more attention when these visiters come
or is it because he has an affinity with other people who are affected by lund disease?
I cant remeber him being quite so relaxed with our other friends who arent affected by lung disease.
The other thing is that the medication he receives from the vet is that which people are prescribed for obstructive lung disease,not interstial lung disease,that of the connective tissue,but it makes him feel much better,so is the diagnosis incorrect or do these drugs work differntly inanimals?!!
Jean,hope yiu are enjoying this lovely evening in Dungeness,the sky must be wonderful.we ahve almost lost the sun in the garden here,but you will have it till it goes down behind the dismantled wedding cake of the power station.
Lots of love from us all here.... I tried it last night but it didn't work so heres trying agin! |
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| Historygirl posted on Wednesday, August 08, 2007 - 3:28 pm
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| The theme of invasion continues to pop up on your journey. You mentioned the Royal Military Canal at Hythe in 3/8 blog; this canal was a major part of the defence agaist the threat of invasion by Napoleon in 1804. The coast around the Romney Marsh was seen as the most likely point of invasion. The canal was nicknamed "Mr Pitt's Ditch", after William Pitt, Prime Minister at the time. |
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| Wonderer posted on Wednesday, August 08, 2007 - 3:44 pm
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| You seem to be meeting lots of people on your journey, who tell stories about relatives with lung disease. Have you met anyone with serious disease, or do most people not get about much? As I am writing this Radio 4 are broadcasting a programme about the Betteshanger Mine; one ex-miner was describing the terrible health toll, and talked movingly about having to work naked underground, because he couldn't bear the chafing of his clothes. He describes recounting this to his disbelieving grandson, who burst into tears at the thought of his grandad working in such conditions. Your project touches on many key problems; keep it up! |
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| Rnj posted on Thursday, August 09, 2007 - 12:26 pm
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Dear jean
I'm really absorbed by your blog: your selection of images is fascinating - can't wait to see the entire body of work. I like how the image and text of your commentary work together/offer counterpoint.
xrosa |
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| Jeanfraser posted on Thursday, August 09, 2007 - 3:06 pm
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A quick post here, and thank you for all new messages. Computer access had been difficult in this area, though Jo (see blog) has been very kind. But I havent had time to do anything other than the blog. It does feel like a lot of stories are getting woven together in the blog, and reflected in some of these forum posts.
I will return to the forum tonight to answer messages.
(Message edited by christel on January 22, 2008) |
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| Jeanfraser posted on Thursday, August 09, 2007 - 7:25 pm
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It's a lovely evening in Winchelsea Beach, a beautiful follow-on from Dungeness. I liked that Mollie called the power station a "dismantled wedding cake". I could have stayed there for longer.
There are lots of connections in the new posts, and connections with the blog. Frankie, it was great to read about the green and red snakes in the caduceus (i did think of having it tatooed on my arm at one time)after seeing the green and red lenses in the old lighthouse. Safety/danger in that case, and your analogy of the interdependence of oxygen and carbon dioxide is pertinent. At school I was taught oxygen=good, carbon dioxide=poison, and only later found out its more positive roles in breathing. Retaining it, as can happen with emphysema, is obviously harmful but then over-breathing oxygen (hyperventilation) seems to cause all kinds of breathing and other disorders. I'm thinking of Buteyko's work on asthma, widely accepted as mainstream treatment in Australia, but not well-known over here. As ever an interdependent balance (clever oracle!)
There are reminders of historical invasion everywhere round this area, History girl. I had wanted to visit the "Listening Ears", huge circular structures which reflected sound and so were intended for early detection of enemy aircraft. Unfortunately you can only access them on occasional organised walks. (There is also a modern concrete version on one side of the Cycle Route 2 bridge over the Military Canal. A notice suggests you have a friend on the other side, and when you whisper into the circular structure they will hear it clearly on their side of the canal. Unfortunately I didnt have a friend at the time...!)I
I imagine there's something in the cultural memory here about invasion. I've never seen so many Union Jacks hoisted from individual dwellings as around the Kent and East Sussex coast. I need to think more about invasion of the body by illness and what that means for me. Anybody have ideas about this? It must be connected with mortality, a fight to resist breaches of body boundaries which aging and its associated conditions will eventually bring.
Mollie - I loved your message and having met Billie the Blogstar, great to hear about his breed. I dont feel he felt very positive about me given his resistance to being photographed, so i'm not sure about your theory about his reacting well to people with lung disease. But I imagine he does get special understanding from your relatives who may identify with his difficulties. I know I felt quite distressed by his cough.
Do you know if there is research done about links between interstial and connective lung disease? I ask because for a while I attended the lupus clinic in London (lupus being an auto-immune disease of the connective tissue which my father had had very severely) and the consultant at that time when told of my asthma was suggesting there might be links.
And Maryf, and Wonderer, Billie the dog was the only being I knowingly met who actually had really severe lung disease. A lot of people I head of at second hand and maybe this reflects something about fear of going out - if say you're on oxygen - but it could just be coincidence. Throughout my journey I haven’t seen anyone on oxygen, but lots of people prefer to use it at home and don’t like to be stared at outside.
The journey is quite near the end now; I may do a ride to Hastings in the next few days as I never did this stretch as a research ride last year. But the finale is a ride accompanied by Hastings Urban Bikes on 19th August.
I have thought about the ride's direction . . . to ride home, or to ride away from home. clockwise, or anti-clockwise. there seems a big existential difference. I have fantasies of just continuing on along the coast and feeling pangs of potential bereavement that this long-planned project is drawing to a close.
On the other hand, I am tired and missing loved ones.
(Message edited by christel on January 22, 2008) |
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| Charlotte posted on Thursday, August 09, 2007 - 7:54 pm
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| Hi Jean, I sent you a message a few days ago but it never reached your blog. How can that happen? Anyway i am glad you have had some good weather and hope rest of journey goes well. Of course you will have mixed feelings at the end, though I suspect this journey has no end. I am just off to USA, we will both be back on 24th august and looking forward to catching up with you after that. Congratulations and love, Charlotte xxxx |
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| Rosemary posted on Thursday, August 09, 2007 - 8:16 pm
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| Hello Jean. Many thanks for your email, thought I would have another attempt to send you a message, the last must have gone into the blue yonder beacuse I can't see it among all the messages you have received. I still can't get any update on your blog, the last entry is as you leave Folkestone, there must be a fault somewhere here, we have had some problems with the computer lately though I did think they were all solved. What an incredible journey you are having Jean, I am full of admiration for this amazing project you have undertaken. It has also allowed you to meet some very interesting people. Life in Whitstable may seem a little quiet at the finish. Hope all goes well for the coming week, keep well and keep cycling. Love Rosemary |
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| Helenwhitenyc posted on Friday, August 10, 2007 - 5:02 pm
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Jean:
I've been following your blog since mum sent me the link last week. I love the photos and the commentary. I can't get enough of the lovely coastal scenery and characters you've met along the way. Its particularly touching to see the old dymchurch railway, and the old hythe imperial hotel, both landmarks from my childhood. Be careful on the bike . Your trip is an inspiration for me. I actually have to write one, though a little different from yours as it has to be about healthcare advertising in new york city (yawn!) Best of luck to you, Helen |
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| Wavewatcher posted on Saturday, August 11, 2007 - 7:32 am
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"The vibrations of breath are the substance of all expression. The spoken word strikes upon the heart like a hammer on a gong, but the power of breath strikes even without the word"
HIDAYAT INAYAT KHAN
An amazing programme 'Touching the Sound' a documentary which explored the connections among sound, rhythm, time, and the body by following percussionist Evelyn Glennie and musician Fred Frith put me in mind of your journey. Evelyns powerful response and connection to her unheard rhythms and breath reminded me of my own unconscious breathing rhythms affected by listening recently to the the Whitstable Samba Pelo Mar drummers. I experienced excitement and power induced by the rhythm. This has led to reading about Taiko and the connection between breathing, rhythm and energy.
'Drawing Breath' has created an awareness and given a whole new meaning to me not least reminding me how lucky I am not to have to think about this automatic reflex....thank you Jean. |
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| Toni posted on Sunday, August 12, 2007 - 9:00 am
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And still this wonderful project/adventure goes on....the god's are being kind to you with the weather and health. The first thing I do each day is come to the site and check the latest. I am addicted! Will have withdrawal symptoms when 'tis over as I suspect you will too!! but I'm sure you'll be glad to get back home to loved ones.
Query though!! You mention going to Weds (8th) to see info on Mary Stamford building and the children's artwork......I can't find it...has this disappeared into the ether, or just my 'puter?
Keep on enjoying the adventure.........BE is with you in spirit. Toni |
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| Toni posted on Sunday, August 12, 2007 - 11:50 am
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Was interesting to read about Mollie's dog Billie. I must agree that animals do have an empathy for those living with illness and disability.....
Many years ago I lived and worked at St. Loyes in Exeter,(A college for the disabled, and had 3 Bearded Collies (very like Billie) but much, much BIGGER!! Very outgoing, boisterous dogs, but around the residents there,(some of whom were extremely disabled) they were quiet, considerate and gentle. That's, I imagine, why PAT Pets as Therapy) dogs came into being. A few years ago when I was in the depths of depression, my then ancient Beardie Gus kept me going!! Toni. |
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| Frankie posted on Sunday, August 12, 2007 - 2:14 pm
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| Hi Jean! this latest tarot card is I think your penultimate one - the next you will be able to choose yourself when you're home if you want to see Madame Zena Philia in person. It's the 7 of Rivers, which signifies wondrous journeys, inspiration and fantasies - sometimes 'a state where thoughts are so filled with possibilities it's hard to choose' ... it celebrates the power and delight of fantasy in our lives and the ability of the imagination to bring reality into being, images flowing into being. Vibrant images of mermaids and boats, more spirals, cups (all those cafes and hospitality!) and the stories told during hopeful travel. Personal fantasies which cause anxieties can be understood as 'projections not objective dangers,' says the oracle. Your journey has shown our coast to be full of the magical and special places and people and life-enhancing meetings we can encounter if we're open. Figures on this card are open yet powerful and, thinking about the notions in earlier posts about invasion by illness or other body-snatchers, S Sontag came to mind again, in her questioning of military metaphors of attack and defence and a seige mentality which can be isolating and xenophobic on both personal and political levels. (Maybe we should be more wary of the enemy within: 'developers' who would alter these places we treasure - e.g., in Whitstable where we are campaigning for Hands Off Our Harbour! ) Lotta continua! |
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| Jeanfraser posted on Sunday, August 12, 2007 - 3:27 pm
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Dear Rnj, Charlotte, Rosemary, Helenwhitenyc, Wavewatcher, Toni and Frankie,
It is very touching to have received so many very positive messages and to know people are enjoying the blog and forum. i feel very privileged to have had this opportunity which is of course now coming to an end. It is quite addictive for me too, Toni, but there's lots to develop from it when i get back. So no threatening vacuum!
There have been a lot of notifications by phone or email of people finding it problematic posting messages. Further back in the Forum I give my own method which is odd but works. The main things seem to be not to try to write message without registering first, remembering to click on the 'groups' tiny box when registering (this enters a tick), and when posting not to be confused by the preview page. This is NOT a post and unless you click again on 'Post this message', your message wont get through.
Also, I was editing the blog this morning, which was why parts of the last two posts would have temporilly disappeared, Toni. Rosemary, hope you've sorted out the problem with no posts past Folkestone.
Frankie and Helenwhitenyc both mention the coast, Helen with the memories of her childhood, and Frankie a more current perception. The coast has been truly inspirational for this project; i find the nearer I am to it when cycling, the better I feel, which might be the air but is also something more psychological. It makes me think of shifting borders, the constant movement of the tide, the sound of the waves on the shingle. In the Rye Harbour area, lorries constantly bring back the shingle that the tide has washed away further to the east - constant exchange. And Wavewatcher, some of those rhythms get right inside the body, they are sometimes echoed in the weather, certainly my experience of drumming is of absorbing vibrations.
I agree Sontag is brilliant on those metaphors of invasion, Frankie. It applies to everything. Levinas in writing about "the stranger" makes the (fairly obvious but often ignored) point that if we wait to help or approach the stranger until we know him/her, then that person has ceased to be a stranger. Ive been warmed by the people who are friends of friends, or didnt previously know anything about me - Connie, Karen, Andi - who invited me into their homes. Strangely the particular symbol of welcome that has lodged in my mind amidst the many kindnesses and hospitality has been - invariably - clean towels waiting for me in the bedroom. There is something powerful about welcoming the new rather than fearing it, though with illness that can be pretty challenging.
I look forward to joining the Hands off Our Harbour campaign when I get home.
I used to have bearded collie - she came from a circus from an adventure many years ago - and I initially thought Billie was a blond beardie. Dogs are very empathic and great therapy especially with children and older people, I just think Billie found it hard to emphathise with my sticking a camera in her face. An invasion, I guess . . .
So people, think of me tomorrow toiling up a 3 mile hill towards Hastings. One advantage of doing this tomorrow as well as next Sunday is that on Sunday I will be trying to keep up, not have to walk too much and avoid hyperventilating. Amidst this there probably wont be time to think about taking photographs or talking to people en route, other than the Hastings Urban Bikes members. So doing this tomorrow will take some pressure off Sunday's ride. As you say, Frankie, lotta continua, but tomorrow my struggle is a hill, not a harbour! |
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| Gillian_frances posted on Monday, August 13, 2007 - 1:40 am
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Hi Jean
Posted a message this morning to you but it didn't get through. This is the first time I have entered anything on a forum so it was a new experience and I probably pressed the wrong button! Here's hoping this reaches you. I spent the whole of this morning reading your forum all the way through - absolutely fascinating.
I loved having you to stay and do come back to Folkestone anytime - things are changing so fast here. New premises emerging from scaffolding and an exciting feeling that may be this time Folkestone will succeed in its regeneration.
Since living in Folkestone, I realised how unfit I had become. The hills after the flatness of Canterbury Streets, really tested me. For years I walked down Wincheap, breathing in the traffic fumes. The quality of air in Folkestone is so much better, I have no idea why I didn't move out sooner. I can even walk up hills now without stopping half way - no need for gyms, just live in a town on a cliff top.
I am so pleased you heard from Helen and so touched she has such fond memories of the coastline here. I do wonder what they all breathed in after 9/11.
Have a wonderful finale of your trip - well done, you are an inspiration to all us artists.
(I love the comment about clean towels! |
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| Annieandbella posted on Monday, August 13, 2007 - 12:07 pm
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Hoots! I've discovered (... been told ...) the way in!
I love this journey and am sorry that it will soon be over for me reading about it. What a wonderful thing to do. Well done, Jean - this has been an amazing read - and I hope that you have enjoyed it.
Please will someone commission a book out of this? It would be so inspirational.
Much love,
Bella Gray |
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| Clare posted on Monday, August 13, 2007 - 1:09 pm
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I've had your card on my desk ever since our brief meeting at a cafe in Deal on 28th July and I have just had a look at your website. What a fantastic journey you are undertaking - personally and creatively. My 11 year old daughter has type 1 diabetes and I always teach her that you can still achieve anything, sometimes more than other people, whilst living with a manageable condition, and your journey does just that.
Your images are intriguing and capture the contrasts of the area so well.
I'll keep logging on, good luck with the rest of your journey. |
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| Sos posted on Tuesday, August 14, 2007 - 1:47 am
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Hi Jean,
Long time out of contact. Travelling. Memorials. Family. But C has arrived and says that the weather for your magical/realistic cycling project has been wonderful and that your journey has been blessed by the weather. I look forward to looking at your postings when back in the land (any land) of blogs and computers. Sending love and daily thoughts. sos |
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| Lulu posted on Wednesday, August 15, 2007 - 3:50 pm
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YOU MADE IT!!! ... very well done! Hope that the cheerleaders are out for you when you do your formal final ascent!
I agree that a book would be a wonderful idea - a fabulous memento of what is possible and a wonderful inspiration for all. [plus an eccentricity for tourists to keep!]
... or dare I suggest a dvd?? ... !!!
Seriously, I really would promote the idea of a book. Jean - you are a 21st centuary Amazon. Well done again!
much love,
Lulu |
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| Rosemary posted on Thursday, August 16, 2007 - 12:19 pm
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| Hello Jean. Having tried twice to send you congratulations I am now going to have another go! What a fantastic achievement! You have completed your project, kept us all updated on the progress of your journey and posted some great pictures. Many, many congratulations. I shall now miss my daily read. I hope the weather is kind to you on Sunday when you repeat that hill climb into Hastings, I remember it well! Hope to see you soon. Love Rosemary |
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| Jeanfraser posted on Thursday, August 16, 2007 - 7:46 pm
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Thanks to everyone for messages, sorry to have been so long out of touch. It's a strange sort of limbo at present between my own final stage last Monday, and the journey this Sunday accompanied by Hastings Urban Bikes.
I am looking forward after Sunday to getting on to working with other people and groups on artwork for the group exhibitions next year. Maybe a book, who knows? Im not sure that doing a blog that people like is a qualification for making a book. It could possibilly form part of a catalogue for the group exhibitions.
And other people's input has always been inspirational to me from the beginning of researching this project, it would have been impossible to do this part without so much support. Sometiimes a short conversation would take me in a whole new direction.
I am touched by Clare's message above. I well remember that meeting in the Deal tearoom (cant remember its name). We had a brief conversation about the frequent reticence (uptightness?) of the British about sharing space with strangers at communal cafe tables, and I gave Clare my card. The part about your daughter, Clare, is lovely. All good wishes to her for her life ahead. Your message is a reminder that it is not just older people but children also who can have serious conditions to deal with.
The importance of childhood memories crops up here, from Helen in NYC, then commented on by her mother, Gillian Francis. This parallels Kate's memories of her grandmother's house referred to in Tuesday's blog. Aspects of the journey have also reminded me of childhood visits to Ireland to stay the summer holidays with my mother's family. The landscape there felt huge, and stays with me.
A bientot! |
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| Monica posted on Thursday, August 16, 2007 - 9:41 pm
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So you've finished your journey! Congratulations! And well done. And as many others have so rightly said, what a fab project.
I recently had cause once again to ponder the exigencies of trying to do 'normal' things when suffering from (or perhaps recovering from - I don't know which I am!) chronic illness. Namely writing, or trying to write, an important conference paper while afflicted with fatigue and brain fog. I thought of you: it seemed to me that there were parities between us at that point, you cycling with compromised lungs and me writing with a compromised brain. But now here we are: me on the other side of my conference and you at the end of your journey, with both having gone really well.
I've really enjoyed your blog, and really really enjoyed your photos: the colours, composition, captured moments - wonderful! |
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| Molliej posted on Sunday, August 19, 2007 - 10:30 am
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Good morning Jean!
Well today sees your triumphal entry into Hastings!!
Do so wish we could be there and certainly would have come along if it hadnt been my grandsons 7th birthday,in Faversham,but we will all of course be with you in spirit.
Some time ago you mentioned the connection between lupus and lung disease and i am unsure about research and will find out..
There is definately a connection between fibrotic lung disease and arthritis because they are both collagen diseases,of the connective tissue so I guess that this could well include lupus if its firosis.COPD is of course airways disease.
We are all looking forward to seeing you again at Breathe Easy and are revving up for the sponsored walk on September 9th.
Would it be fair to put in a plug on your blog for this?
If there is anyone out there who would like to join us on 9th September,11.30am at Hampton Pier Herne Bay,to walk along the sea front to Tankerton to the marine for lunch and then after that back again to Hampton Pier,4 miles in total.
Barbara Sturgeon is setting us off and walking with us, to raise the profile of lung diease as will Jean.
Jean do you think you would be able to come along with your bike and start off with Barbara, and maybe at lunchtime say a few informal words about how your life has been since July 16th?
It would really all blend together and if as many of you folks out there as possible could come along it might complete the picture of what Jean has been and will be creating.
Well, well done Jean!! |
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| Lulu posted on Sunday, August 19, 2007 - 2:57 pm
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Hello, Jean -
Today will be the end of your amazing bike tour.
This morning I was at the Winchelsea Beach end of the Rye Nature Reserve and I saw a fluorescent flash whizz past me - was that you?
I do hope that you have enjoyed the journey as much as I have enjoyed reading about it. Inspirational.
With All Bests,
Lulu |
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| Molliej posted on Sunday, August 19, 2007 - 9:25 pm
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Dearest Jean
By now you will be at home with dear friends and the real comfort of being able to just be....
You have truly acheived such an amazing 'fait'
When you first came to see me at the Whitstable and Tankerton Hospital to talk about your vision for this ride and all the acoutramounts,I could see it all in my soul but was not sure how it was going to work in practicalities,but with all these things,I always feel that one should follow ones visions and gut reactions,which you have done and we have the evidence of such inspiration.
I think great things will come out of this amazing acheivement You have done amazing things over the past few weeks.
Please allow yourself some time and space before you work towards complting the whole project.
Advice......
Hot long lavendar bath...fresh clean sheets... a glass of good red wine.....and sleep well. |
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| Maggie posted on Tuesday, August 21, 2007 - 11:02 pm
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| Hello Jean. Trevor and I have just looked through your whole blog (me sitting on his lap infront of the screen). Seeing it all at once we are both impressed by your journey and congratulate you on your achievement. - And now I want to do it too! - or some of it - although I didn't even make it from Rye to Hastings in the rain, did I! |
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| Cathy_mct posted on Wednesday, August 22, 2007 - 6:34 pm
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| Hi Jean, I've just spoken to you and am writing to say yet again how inspiring your adventure has been. Your images are so multi meaningful. You look so well and happy and victorious! Lots of food for thought...how difficulties can be fuel the creative drive. If it is sink or swim, choose cycling! Lots of love, Cathy |
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| Maryf posted on Wednesday, August 22, 2007 - 8:56 pm
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| Jean, I've just been reading through the whole of your great journey with all the interesting comments of fellow bloggers. Just wanted to say congratulations on your achievment and thank you for sharing it all with us |
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| Jeanfraser posted on Saturday, August 25, 2007 - 9:23 am
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Good morning, Monica, Molliej, Lulu, Maggie, Cathy_mct and Maryf and anyone else who has logged on!
Apologies for so long a delay in replying. I've been back nearly a week now and it's quite strange re-adjusting to normal life. Thank you for your kind messages, it has meant a lot to me that people have enjoyed this and have kept posting messages of encouragement. It has been particularly interesting to see the posts about experiencing chronic illness.
The project now moves into its next stage, work with various groups by different arts practitioners to be included in group exhibitions next year. Dates and details for talks and exhibitions will be posted on the Events page. But before this, the slideshow needs editing and uploading onto the site. Mileage has to be checked and, where necessary re-entered on the blog, as my milometer stopped working on the way.
I am also collecting retrospective sponsorship for the British Lung Foundation. Before the journey, I wasn't confident that I would be able to manage the whole route, and getting sponsored at that stage felt too pressurizing, something I now regret. Contributions can be sent directly to the BLF with a note that they are sponsorship donations connected with the Drawing Breath project.
Although this part of Drawing Breath is winding down, the forum will remain open for any follow-up, or new thoughts on social, cultural or other aspects of breathing. I get notification via my email when a new message is posted, so nothing will get missed!
To everyone who has participated in or contributed to the project: in particular my Breathe Easy group; Mollie Jackson and staff from the Eastern and Coastal Respiratory team; Judy Russell, respiratory physiologist Conquest Hospital; Hastings Urban Bikes; Christel Pobgee, Kent County Council forum moderator; Broadstairs and Dover Libraries; friends who gave me shelter along the route and everyone who posted messages here : THANK YOU. |
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| Jeanfraser posted on Tuesday, September 04, 2007 - 3:22 pm
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I received this a couple of weeks ago from Monica who has posted here before. It rung some bells with me and she suggested I post it for her on the forum:
Good morning, Jean!
Thing is, the hep (hepatitus C) has actually been immensely useful for me [in fact, you could post what I've just started to write!]. A big part of the reason for that is that it was what it took for me to start caring for myself rather than keep pushing myself; to start using the carrot rather than the stick, as it were. Which has had huge implications for me in all sorts of ways, all of them good. One aspect of that has of course been my tai chi practice, from which much of immense value has followed for me, since it has proved the means for me to start addressing stuff that goes way, way back in my life, and which is the underlying cause of my contracting hep C.
So the illness contained its own cure, like the egg in the ball of dung by the scarab (or dung) beetle. (As you may know, because it coats its egg in a ball of dung the scarab was, for the ancient Egyptians, a symbol of the sun at midnight, i.e. the point at which the sun is most hidden, but thereby about to return.)
Anyway, enough for now; I could go on and on in relation to this sort of stuff! It's a beautiful morning and I hope it is where you are too (Hastings? Whitstable?). And I'd love to meet up sometime next week.
love
m |
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| Drkennyg posted on Tuesday, June 24, 2008 - 9:04 am
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| This is my 1st post. I also have emphysema and for Wonderer and Jeanfraser it isn't reversible, but can be stabilized with regular exercise and good diet and balanced meds from a Pulmonary Specialist. Oxygen may be required if lung function becomes unbearable - In the USA it is easier to get Oxygen prescribed. Also the lung is not a muscle but it flexes in the chest cavity by pressure differences and surrounding muscles esp. the diaphragm. |
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| Rosy posted on Thursday, May 28, 2009 - 6:15 pm
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Hi
Inspiring stuff...
I just bought myself a new pair of walking boots for a south west coastal path walk/stroll- I have never learnt to cycle, I am ashamed to admit - and reckon they will last longer than my knees!!!!
So - be fit, healthy, breathe in that sweet sea air - may the weather be kind and your body be strong. What a brilliant way to celebrate being you
Love from
Rosy |
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| Bella posted on Monday, June 08, 2009 - 5:39 pm
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Dear Jean -
Am writing as am worried about your cut from the can of peas .... 'needing a stitch?' .... is it all ok? here on the south east coast it is POURING with rain - lovely for the garden but grim for cyclists. hope you are dry and well and in good heart?
love the Log. all bests,
Lulu xx |
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